1 2 7
SPRING 2012 13
Advocacy Timeline Research Events
Action Alert A Publication of the Coalition for Pulmonary Fibrosis
Washington Update Congressional Briefing
The CPF sponsored a congressional briefing with the American Thoracic Society and other patient groups on February 29, 2012 at the Cannon Building on the U.S. House of Representatives side of the U.S. Capitol. CPF volunteers attended the event called "Research in Lung Health: The Pathway to Cures for Pulmonary Fibrosis & Pulmonary Hypertension". The briefing was organized in cooperation with U.S. House of Representatives members Reps. Kevin Brady (R-TX), Erik Paulsen (R-MN) & Lois Capps (D-CA).
Pulmonary Fibrosis and Pulmonary Hypertension, a commonly diagnosed secondary condition along with PF, were the topics of the briefing and were presented by leaders in the field to help educate members of Congress and their staffs on the important research going on in these areas and the impact the diseases have on American lives.
The event featured National Heart, Lung, Blood Institute (NHLBI) Acting Director, Susan Shurin, M.D., who spoke on the NHLBI's research in lung health and disease and noted progress and challenges in PF and PH, Victor Thannickal, M.D., the Ben Vaughn Branscomb Chair of Medicine in Respiratory Disease, at the University of Alabama, spoke on the search for new therapies for PF while Serpil Erzurum, M.D., Chair of the Department of Pathobiology at the Cleveland Clinic, discussed the advances in treatments in PH, a disease that had no treatments just 10 years ago. The two diseases were compared, demonstrating how research can lead to treatments.
Several PF patients and family members attended the event and were on hand to speak with members of Congress and their staffs regarding their personal perspective on PF.
For the latest news and information, visit us on the Web at www.coalitionforpf.org
CPF Awareness Efforts Build Across the U.S.